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dc.contributor.editorKrutzinna, Jenny
dc.contributor.editorFloridi, Luciano
dc.date.accessioned2021-02-10T13:59:49Z
dc.date.available2021-02-10T13:59:49Z
dc.date.issued2019
dc.identifier1007044
dc.identifierhttp://library.oapen.org/handle/20.500.12657/23112
dc.identifier.urihttps://directory.doabooks.org/handle/20.500.12854/32527
dc.description.abstractThis open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one’s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes.
dc.languageEnglish
dc.relation.ispartofseriesPhilosophical Studies Series
dc.rightsopen access
dc.subject.classificationbic Book Industry Communication::H Humanities::HP Philosophy
dc.subject.classificationbic Book Industry Communication::K Economics, finance, business & management::KC Economics::KCP Political economy
dc.subject.classificationbic Book Industry Communication::M Medicine::MB Medicine: general issues::MBP Health systems & services
dc.subject.otherMedicine
dc.subject.otherMedical policy
dc.subject.otherSocial policy
dc.subject.otherPhilosophy
dc.titleThe Ethics of Medical Data Donation
dc.typebook
oapen.identifier.doi10.1007/978-3-030-04363-6
oapen.relation.isPublishedBy9fa3421d-f917-4153-b9ab-fc337c396b5a
virtual.oapen_relation_isPublishedBy.publisher_nameSpringer Nature
virtual.oapen_relation_isPublishedBy.publisher_websitehttp://www.springernature.com/oabooks
oapen.pages198
oapen.place.publicationCham
dc.dateSubmitted2020-03-18 13:36:15
dc.dateSubmitted2020-04-01T09:04:03Z


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open access
Except where otherwise noted, this item's license is described as open access